His bus driver is the same as last year and is a very nice lady and we are glad to have her. His aide on the bus is very nice too and according to Fadi she told him she is over 80.
New Year and New Beginnings...
15 years ago
Through the daily ins and outs the "G" family fixes it's eyes on Christ and holds Proverbs 3:6 dear "seek HIS will in all you do and HE will show you which path to take".
| Medications | |
| Phenobarbital | 2006-2009 |
| Baclofen | 2006-Present |
| Clonazepam | 2007-Present |
| Robinul | 2007-Present |
| Keppra | 2008-Present |
| Lamictal | 2008-Present |
| Prevacid Xopenex Pulmicort | 2006-Present 2006-Present 2008-2009 |
| Surgeries | |
| VP Shunt | 2/2006 |
| VP Shunt Revision | 3/2006 |
| VP Shunt Wound Surgery | 4/2006 |
| VNS Surgery | 9/2008 |
| Ear Tubes T&A Removal Uvulopalto Pharyngoplasty G-Tube | 9/2008 1/2009 1/2009 4/2009 |
| Diagnosis |
| Pseudo-TORCH |
| gain copy # in the terminal region of the long arm of chromosome 4q35.2 detected with 4 clones |
| Seizures/Intractable/Lennox-Gastaut |
| Developmentally Delayed |
| Infantile CP Quadriplegic |
| Hydrocephalus (fluid on Brain) |
| Microcephaly (small head) |
| microphthalmia (Small eyes) |
| Hypertonic (Tight Muscles) |
| Spastic |
| Bilateral Retinal Detachment (Blind) |
| Bilateral Profound Hearing Loss (Deaf) |
| Cerebral Atrophy (brain shrinking) |
| Cerebral Calcifications Dislocated Hips |
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