Here is a picture of his NG tube. He even gave us a few smiles, much to our delight.
New Year and New Beginnings...
15 years ago
Through the daily ins and outs the "G" family fixes it's eyes on Christ and holds Proverbs 3:6 dear "seek HIS will in all you do and HE will show you which path to take".
| Medications | |
| Phenobarbital | 2006-2009 |
| Baclofen | 2006-Present |
| Clonazepam | 2007-Present |
| Robinul | 2007-Present |
| Keppra | 2008-Present |
| Lamictal | 2008-Present |
| Prevacid Xopenex Pulmicort | 2006-Present 2006-Present 2008-2009 |
| Surgeries | |
| VP Shunt | 2/2006 |
| VP Shunt Revision | 3/2006 |
| VP Shunt Wound Surgery | 4/2006 |
| VNS Surgery | 9/2008 |
| Ear Tubes T&A Removal Uvulopalto Pharyngoplasty G-Tube | 9/2008 1/2009 1/2009 4/2009 |
| Diagnosis |
| Pseudo-TORCH |
| gain copy # in the terminal region of the long arm of chromosome 4q35.2 detected with 4 clones |
| Seizures/Intractable/Lennox-Gastaut |
| Developmentally Delayed |
| Infantile CP Quadriplegic |
| Hydrocephalus (fluid on Brain) |
| Microcephaly (small head) |
| microphthalmia (Small eyes) |
| Hypertonic (Tight Muscles) |
| Spastic |
| Bilateral Retinal Detachment (Blind) |
| Bilateral Profound Hearing Loss (Deaf) |
| Cerebral Atrophy (brain shrinking) |
| Cerebral Calcifications Dislocated Hips |
4 comments:
Welcome HOME G family!
from Rachel
Praise the LORD!
Yay!!! Good to hear everyone is back home :-)
Lots of love to you, guys!!
I am so glad you are home and hope the days since your return have gone even smoother. I was so moved by your 2/3 update post. I can't imagine being in the role you have with Eli. You both seem so strong to me, but I know your strength does not come without great effort. There must be many days when you feel so drained and frustrated. Please know that we think of you and pray for you often.
--Kelley
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