Just when I start to wonder if I am doing anything right raising this child, he does things like this that make me think, I must be doing a thing or two right.
New Year and New Beginnings...
15 years ago
Through the daily ins and outs the "G" family fixes it's eyes on Christ and holds Proverbs 3:6 dear "seek HIS will in all you do and HE will show you which path to take".
| Medications | |
| Phenobarbital | 2006-2009 |
| Baclofen | 2006-Present |
| Clonazepam | 2007-Present |
| Robinul | 2007-Present |
| Keppra | 2008-Present |
| Lamictal | 2008-Present |
| Prevacid Xopenex Pulmicort | 2006-Present 2006-Present 2008-2009 |
| Surgeries | |
| VP Shunt | 2/2006 |
| VP Shunt Revision | 3/2006 |
| VP Shunt Wound Surgery | 4/2006 |
| VNS Surgery | 9/2008 |
| Ear Tubes T&A Removal Uvulopalto Pharyngoplasty G-Tube | 9/2008 1/2009 1/2009 4/2009 |
| Diagnosis |
| Pseudo-TORCH |
| gain copy # in the terminal region of the long arm of chromosome 4q35.2 detected with 4 clones |
| Seizures/Intractable/Lennox-Gastaut |
| Developmentally Delayed |
| Infantile CP Quadriplegic |
| Hydrocephalus (fluid on Brain) |
| Microcephaly (small head) |
| microphthalmia (Small eyes) |
| Hypertonic (Tight Muscles) |
| Spastic |
| Bilateral Retinal Detachment (Blind) |
| Bilateral Profound Hearing Loss (Deaf) |
| Cerebral Atrophy (brain shrinking) |
| Cerebral Calcifications Dislocated Hips |
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